Race to a cure for ALS
Brian Wallach has beaten the odds; four years ago, he was diagnosed with amyotrophic lateral sclerosis, and given six months to live. He's used that time to lobby for more research funds for promising drugs to combat ALS, and to make experimental treatments available.cbsnews.com
Never give up: Assistant chief at JSO battles Lou Gehrig’s Disease
JACKSONVILLE, Fla. – Jimmy Judge stepped behind the barbell. In his 30 years with the Jacksonville Sheriff’s Office, Judge has never stepped away from a challenge. But last year he was diagnosed with amyotrophic lateral sclerosis (ALS), better known as Lou Gehrig’s disease. ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord, according to the ALS Association. “Myo” refers to muscle, and “Trophic” means nourishment: “No muscle nourishment.” When a muscle has no nourishment, it “atrophies” or wastes away.
JSO assistant chief spreading the word about ALS while fighting for his life
JACKSONVILLE, Fla. – For 30 years, Jimmy Judge has committed his life to his family and the Jacksonville Sheriff’s Office. Now, as an assistant chief with JSO, he’s in one of the greatest fights of his life. A Special Fundraiser benefiting Jimmy Judge & His FamilyHe’s spreading the word about ALS while fighting for his life. “He said, ‘Jimmy, this disease, people don’t survive this disease,’” Judge said. So, if you see him moving and not resting, don’t judge him.
Man fighting revamps foundation to cope with pandemic impact
In April 2012, Kevin founded A Life Story Foundation, which has raised more than $1.5 million for ALS awareness and research and can be found at alifestoryfoundation.org. “We get questions that are so basic, and we have seen it all over the past eight years,” he said. There is an existing network of nonprofits focused on curing ALS and easing the path of those afflicted with the disease. Cash had been ticketed for a home with another family, but he quickly bonded with Kevin and Shaina. Kevin and Shaina had a courthouse wedding Jan. 26, 2018 – a year after their first date, with Shaina already pregnant with Elliott.
Longtime WJXT executive producer posthumously honored at Eve Awards
JACKSONVILLE, Fla. – A producer at News4Jax for more than 25 years who lost her battle with Lou Gehrig’s Disease earlier this year was posthumously honored Wednesday at the Florida Times-Union’s Eve Awards. Sharon Siegel-Cohen, 62, was one of 12 finalists. The Eve Awards honors women for their contributions to the community. The three recipients are Brenda Priestly Jackson, Randy DeFoor and Shannon Nazworth. The Eve Awards were established by the Florida Times-Union in 1969.
Jacksonville City Council to honor life of WJXT’s Sharon Siegel-Cohen
JACKSONVILLE, Fla. – Our WJXT family continues to mourn beloved executive producer Sharon Siegel-Cohen, who lost a courageous battle this month with Lou Gehrig’s disease, or ALS. Her accomplishments and life are being recognized in a resolution that will be introduced Tuesday night to the Jacksonville City Council by Councilwoman Joyce Morgan, who was an anchor at WJXT in the 90s and early 2000s. READ | City Council resolution to honor Sharon Siegel-CohenA Jacksonville native and a friend to hundreds, Sharon, 62, shaped countless lives in her work with WJXT, including scores of interns who came through our doors. Many of them eventually came to work for WJXT themselves, among them anchor and reporter Vic Micolucci. The day Sharon passed, Micolucci posted a heartfelt tribute on Facebook, calling Sharon his dear friend, mentor, work mother and fearless leader.
Sharon Siegel-Cohen: How one woman meant so much to so many
Longtime executive producer Sharon Siegel-Cohen lost a courageous battle with Lou Gehrig’s disease, or ALS. Full Screen 1 / 24 Sharon leads her team and more than 1,000 others Saturday in the Jacksonville Walk to Defeat ALS. “Sharon’s Day, Sharon’s Day, her birthday is today.”One of a kind: caring, compassionate, comical, Sharon even attempted a short rap career with her son, Martin, for his high school prom. In recent weeks, with the COVID-19 pandemic and social distancing, those who loved Sharon resorted to sending videos and uplifting messages. “Five days a week, Sharon and I were together, she was family,” anchor Bruce Hamilton said somberly after her passing.
Larry Falivena has ALS, and he's visiting all 30 MLB ballparks
Larry Falivena is spending three months traveling to MLB ballparks in an RV, and his family has joined him. But for Larry Falivena, a husband and father of two, accomplishing that goal is about much more than the game. A nod to "Iron Horse" Lou GehrigIn February, Larry and Shana Falivena met with the CEO of the ALS Association, Calaneet Balas. Gehrig, dubbed the "Iron Horse" for playing 2,130 consecutive games, retired from baseball in 1939 after being diagnosed with ALS. "This mission is more important than being comfortable and safe and protected in our own little bubble in Apex," Shana Falivena said to CNN.
Thousands walk to defeat ALS
JACKSONVILLE, Fla. – Thousands of people gathered at Tinseltown on Saturday to join in the Walk to Defeat ALS, including a large group of News4Jax employees walking to support executive producer Sharon Cohen who was diagnosed with a form of ALS. PHOTO GALLERY: Songbirds walk to support Sharon, defeat ALSDespite her diagnosis, she was smiling at today's walk and pleased to see so many others there to support her and others battling ALS. People at the walk were chanting, "We will, we will, we will cure this disease." An estimated $29,000 was raised by Sharon's Songbirds to support the effort to find a cure for ALS. Money raised by the Jacksonville walk will go to help those locally living with and affected by ALS.
Man with ALS shares joy of tuxedos with Steve Hartman
Man with ALS shares joy of tuxedos with Steve Hartman When Chris Rosati, a North Carolina man with ALS, isn't busy spreading acts of kindness he enjoys having a laugh. Watch him show off his love of tuxedos in a fun skit with CBS News' Steve Hartman.cbsnews.com
How will ALS foundation spend Ice Bucket Challenge millions?
How will ALS foundation spend Ice Bucket Challenge millions? The ice bucket challenge was one of the most successful charity campaigns raising over $114 million, but is all that money being spent effectively? Michelle Miller reports.cbsnews.com
Lawmakers and religious groups ban ALS ice bucket challenge
Lawmakers and religious groups ban ALS ice bucket challenge The ALS ice bucket challenge has now raised almost $42 million since late July, up from just $2 million last year. Many of the 740,000 donors have participated in the fun ice challenge, but others have reasons why they can't join the cause. Ben Tracy reports.cbsnews.com